Who Am I?

My name is Sabrina Diane and I am a Spirited Spondy, which is a title that was given to me by my family due to my determination, a.k.a. stubborn streak.  I was never a high spirited person and not a fan of cheerleaders and all that rah-rah in my younger days, but now?  Now…I am determined to raise awareness of my invisible battle.  So I’ll gladly accept that title and do my best to not disappoint!

I was asked what I expected the public to get from all of this.  That is complicated and changes nearly every time I encounter someone who doesn’t have a clue. Mostly I want people to know what Ankylosing Spondylitis is and the battle their loved ones, friends and even strangers are facing.  That just because you don’t look sick doesn’t mean you aren’t sick.  They aren’t lazy, they are hurting.  I want people to know that chronic pain is NOT something one can “deal with” but with understanding and support they can adapt to it.

More importantly what I want to offer to my Spondy Warrior Family is HOPE and Knowledge to empower them to be proactive and take on this disease with all they’ve got.  I want my Spondy family to know they are not alone in their battle.  There are many great support groups and resources out there with more popping up every day.  I’m going to do my best to bring all that to you.  Ankylosing Spondylitis is a monster but I’m fighting back and am bent on helping others!

Hehe…Spondy Humor.Sabrina

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4 responses to “Who Am I?

  1. Sabrina, The Spirited Spondy! I like it, no, LOVE it. I was diagnosed with AS in 2005 after a lifetime of wondering what was wrong with me. I am thrilled to have stumbled across your blog today. I have felt very alone in dealing with my AS, it is very hard for people to understand and it isn’t something you hear about every day, that is unless you live with it. Thank you, for bringing awareness and for sharing your personal stories, I have only read a couple of entries so far, the one about working and the one about your challenges with medication and I was absolutely related to both. I too have had my share of side effects from meds. used to try and slow the progression an manage pain but the last one landed me in the hospital near death and i am now, like yourself limited to one medication, which is only for pain management. People asked what you wanted to accomplish through this. Well, I can tell you that you have made a very big difference for at least one person who was feeling very alone in the Spondy world, and now I feel less alone, thank you for that. Good luck in your quest to stay healthy and moving!

  2. I was just diagnosed with Kyphosis of the thoracic spine. I am wondering if this is related to AS? I also have OA, DDD, PN, FBS, Fibro, Diabetes and more. I am a walking pain encyclopedia 😀

    • Walking pain encyclopedia…lol. Kyphosis alone would not be enough to diagnose but it would be more than enough to start the conversation with your doctor. Spondylitis patients also have higher risk of OA and DDD. I have OA as well. You should start talking to your doctor about the possibility. Try taking this basic spondylitis quiz to see if you are on the right track.

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