My name is Sabrina Diane and I am a Spirited Spondy, which is a title that was given to me by my family due to my determination, a.k.a. stubborn streak. I was never a high spirited person and not a fan of cheerleaders and all that rah-rah in my younger days, but now? Now…I am determined to raise awareness of my invisible battle. So I’ll gladly accept that title and do my best to not disappoint!
I was asked what I expected the public to get from all of this. That is complicated and changes nearly every time I encounter someone who doesn’t have a clue. Mostly I want people to know what Ankylosing Spondylitis is and the battle their loved ones, friends and even strangers are facing. That just because you don’t look sick doesn’t mean you aren’t sick. They aren’t lazy, they are hurting. I want people to know that chronic pain is NOT something one can “deal with” but with understanding and support they can adapt to it.
More importantly what I want to offer to my Spondy Warrior Family is HOPE and Knowledge to empower them to be proactive and take on this disease with all they’ve got. I want my Spondy family to know they are not alone in their battle. There are many great support groups and resources out there with more popping up every day. I’m going to do my best to bring all that to you. Ankylosing Spondylitis is a monster but I’m fighting back and am bent on helping others!